Posted by: fibrowriter | April 23, 2010

From one to six months…

Sooo, beginning in April, 2010, I’ve been told by actual lawyers, not paralegals or assistants the following:
“The hearing could be any time now. From one month to six months away.” The lawyer, B., is actually quite nice. He encouraged me to turn to my faith community for support. It is sad that I have had to turn from my home church and try to find a new church. The church community was great, the Pastor…not so much.

I’m so tired of it all. It is like waiting for my “ship” to come in.

This year I have lost one friend…I don’t know where she is, what she is doing, or why she stopped talking to an entire group of her friends. I miss her. I have made some new friends, however, not all have turned out to be true blue. It makes me tense up and want to hide in a hole. Just listen to audiobooks, garden a little, bowl a little, and stay away from people – this is my new temptation – avoid the problems. Naw, I don’t like it either. But it is as tempting to me as a chocolate cake with rum ganache made of gluten filled wheat.
I’m tired of speaking to the nurse practitioner whom only recommends more new brand drugs that sound like the old drugs only more expensive and just as horrible due to side effects.
My husband had to take a job that takes him away from home most of the time. Egads! With him home I had a hard time keeping house. Being responsible for the whole shooting works is driving me bananas. I’m going to have to revert to Franklin Covey (eek business tools) to manage my housework, yardwork, and bill paying routine.

I started Tai Chi exercise last Nov. It is very painful. “they” say that exercise helps fibromyalgia patients in the long term. In the short term my patience with the increased pain, and decreased mobility are driving me bananas.

Good news: My eye troubles that started in ’07, which I have since linked to my meds, are actually being addressed by competent Opthalmologists. I have a temporary lense sticker in one of my eye glass lenses. They re-evaluate my eyes again soon. (gremlins singing “whoops there goes another pile of cash) But at least there seems to be treatment and hope for me to return to reading a lot, at length, and in regular fonts. I just attributed it to the mystery of fibromyalgia.

I’m curious, am I the only person that thinks the Lyrica commercials sound like fibros have a bad case of “nerves”? I have heard from one friend that the side effects are not good. Have you tried adding gentle exercises and how did it effect you long term?
Have you tried Lyrica?
Have you tried Flax seed oil (nasty stuff recommended to me for the inflammation in my eyelids. Taken internally with a soda or juice chaser) I don’t notice it helping the fibro, the eyes? maybe I cannot tell. I didn’t even know I had under eyelid rosacea….i.e. ocular rosacea.

OK brain dump over.

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